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Resources and Links

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Airway Clearance

An Introduction to Airway Clearance Techniques
Download PDF | 296 KB

An Introduction to Postural Drainage & Percussion
Download PDF  | 212 KB


Antibiotics

Azithromycin for People with Cystic Fibrosis: Is it right for you?
Download PDF |
56KB
Bacteria and Antibiotic Resistance in People with Cystic Fibrosis
Download PDF | 96 KB


Antioxidants

Glutathione and Other Antioxidants: Information for Patients and Families
Download PDF file | 32 KB


CF Care

It’s All About Suzy: Quality Improvement in CF Care
Download PDF | 192KB


Clinical Trials

Clinical Trials Sponsored by the CF Foundation
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Clinical Trials Available in the United States
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Curcumin

Curcumin: Information for Patients and Families
Download PDF | 40 KB


Diabetes

Managing Cystic Fibrosis-Related Diabetes (CFRD) 6th edition
Download PDF | 1.07 MB

Spanish Version – Managing Cystic Fibrosis-Related Diabetes (CFRD) 6th edition
Download PDF | 4.33 MB


Exercise

Exercise in CF
Download PDF | 457KB


Hospital Admission

A Guide to Inpatient Care for Cystic Fibrosis Families
Download PDF | 3.58 MB


Hypertonic Saline

Hypertonic Saline Therapy for Cystic Fibrosis: Is It Right for You?
Download PDF | 44 KB

Hypertonic Saline Solution: Instructions for Self-Preparation for Patients and Families
Download PDF | 32 KB


Infections

Influenza (Flu)
Download PDF | 692 KB

Respiratory: Stopping the Spread of Germs
Download PDF | 856 KB

Respiratory: What you Should Know About Germs
Download PDF | 220 KB


Insurance

Day-to-Day: Know Your Health Insurance Coverage
Download PDF | 168 KB


Internet

Guide To “Healthy” Web Surfing, Ways to Evaluate the Quality of Health Information on Web Sites
Download PDF | 48 KB


Ibuprofen

Ibuprofen: Information for Patients and Families
Download PDF | 40 KB


Lung Transplantations

Lung Transplantation and CF
Download PDF | 52 KB

Johns Hopkins Hospital Lung Transplantation Program
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Nebulizer Therapy

Respiratory: Which Nebulizer for Which Drug?
Download PDF | 89 KB


Nutrition

Healthy Eating
Download PDF | 141 KB

Nutrition and Cystic Fibrosis: Changes Through Life
Download PDF | 152 KB

Nutrition for Your Infant with Cystic Fibrosis
Download PDF | 116 KB

Nutrition for Your Child with Cystic Fibrosis
Download PDF | 180 KB

Nutrition for Your Toddler with Cystic Fibrosis
Download PDF | 152 KB

Nutrition for Teens with Cystic Fibrosis
Download PDF | 140 KB

Nutrition: Pancreatic Enzyme Replacement in People with Cystic Fibrosis
Download PDF | 128 KB

School, Enzymes and Sports for the Child with Cystic Fibrosis
Download PDF | 164 KB

Supporting Nutrition: Understanding Tubefeeding
Download PDF | 435 KB

Vitamin A
Download PDF | 140 KB

Vitamin D
Download PDF | 136 KB

Vitamin E
Download PDF | 164 KB

Vitamin K
Download PDF | 132 KB


Organizations

American Lung Association
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Cystic Fibrosis Foundation
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Cystic Fibrosis Foundation Maryland Chapter
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Peripherally Inserted Central Catheter (PICC)

Caring for Your Peripherally Inserted Central Catheter (PICC)
Download PDF | 63 KB


Scholarships

Cystic Fibrosis Foundation
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Boomer Esiason Foundation
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Recipies

Cookbook created by the Johns Hopkins Family Advisory Board
Download PDF | 283KB


Research

About Clinical Trials
Download PDF | 766KB

Child’s Story about Research – Emma Green Science Superstar
Download PDF | 5.4MB

Informed Consent
Download PDF | 462KB


School

Day to Day: School and CF
Download PDF | 242 KB

A Teacher’s Guide to CF
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Parents’ Place of Maryland
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School, Enzymes and Sports for the Child with Cystic Fibrosis
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Smoking Cessation

American Cancer Society
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Quit Day
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Quit Smoking Community
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Web Casts

Web Casts Sponsored by the CF Foundation
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