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Our goal for this website is to help our patients and their families connect in ways that CF often doesn’t allow. Because of the risk of respiratory infections, CF patients have to keep their distance from each other, despite their desire to meet new friends and share their experiences. And as much as parents would like to meet with other families, the demands of caring for a CF child limit those times. Patients, parents and other family members constantly have questions for doctors, nurses and therapists, too—but too often those questions must wait for the next appointment. We’ve set up this chat to speed up such communications and create connections. We’re starting out with a focus on chats with our CF team. In the future, look for a chat room or message board for patients and their families to connect with each other. For now, please check our chat schedule above and join in. We’ve got rules to protect your privacy, so please read them. And please suggest any topics you’d like to see discussed. We’ll store an archive of past chats on this site, too. Thank you.
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