Teenage boy reading Hopkins CF Newsletter: Partners in Discovery

Family Education Day

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Family Education Day 2016

Saturday, November 12, 2016

Introduction and Highlights of the Previous Year (video: 15 minutes 34 seconds )
Peter J. Mogayzel Jr., MD, PhD, Professor, Johns Hopkins University School of Medicine

Cystic Fibrosis Foundation Compass Program (video: 6 minutes 4 seconds)
Heather Chesiyna, Cystic Fibrosis Foundation

An Adult Perspective (video: 26 minutes 43 seconds)
Natalie E. West , MD, MHS, Assistant Professor of Medicine

Personalizing CF Care – Now and in the Future (video: 66 minutes 49 seconds)
J.P. Clancy, MD, Professor of Pediatrics, University of Cincinnati


Family Education Day 2015

Saturday, November 21, 2015

Introduction and Highlights of the Previous Year (video: 22 minutes 30 seconds )
Peter J. Mogayzel Jr., MD, PhD, Professor, Johns Hopkins University School of Medicine

Johns Hopkins Adult CF Program (video: 13 minutes 41 seconds)
Noah Lechtzin, MD, Associate Professor, Johns Hopkins University School of Medicine

An Adult Perspective (video: 29 minutes 16 seconds)
Amy Lucy

Parent Panel  (video: 27 minutes 29 seconds)
Family Advisory Board Members

A Conversation with Dr. Bob Beall (video: 64 minutes 4 seconds)
Robert Beall, PhD, Former President and CEO, Cystic Fibrosis Foundation
Peter J. Mogayzel Jr., MD, PhD, Professor, Johns Hopkins University School of Medicine


Family Education Day 2014

Saturday, November 15, 2014

Introduction and Highlights of the Previous Year (video: 14 minutes 42 seconds )
Peter J. Mogayzel Jr., MD, PhD, Professor, Johns Hopkins University School of Medicine

Brief History of Cystic Fibrosis (video: 16 minutes 26 seconds)
Peter J. Mogayzel Jr., MD, PhD, Professor, Johns Hopkins University School of Medicine

Everything You Wanted to Know About Cystic Fibrosis but Were Afraid to Ask   (video: 25 minutes 41 seconds) – Expert Panel

Growing Up with Cystic Fibrosis (video: 65 minutes 34 seconds)
Jerry Cahill, CF Advocate

The Journey to Delivering Transformational CF Therapeutics (video: 68 minutes 14 seconds)
Michael Boyle, MD, Associate Professor of Medicine, Johns Hopkins University School of Medicine


 

Family Education Day 2013

Saturday, November 9, 2013

Introduction and Highlights of the Previous Year (pdf 1.26 Mb )
Peter J. Mogayzel Jr., MD, PhD, Professor, Johns Hopkins University School of Medicine

Laws that Help People with CF: The Affordable Care Act, Social Security and Education Laws (pdf 1.33 Mb) – Beth Suffian, JD, Partner, Sufian & Passamano, L.L.P

Exercise as Medicine  (video: 50 minutes 57 seconds)
Holly Loosen, PT and Karen von Berg, DPT, Johns Hopkins Children’s Center

Beyond Butter: Improving Nutrition in CF (video: 37 minutes 13 seconds)
Amanda Leonard, RD, Johns Hopkins Children’s Center

Advances in CF Research (video: 45 minutes 57 seconds)
Patrick Sosnay, MD, Assistant Professor of Medicine, Johns Hopkins University School of Medicine


 

Family Education Day 2012

Saturday, October 20, 2012

Introduction and Highlights of the Previous Year (video: 26 minutes 6 seconds)
Peter J. Mogayzel Jr., MD, PhD, Associate Professor, School of Medicine

The New Children’s Center/ Advocacy and Family-Centered Care in the New Children’s Center (video: 47 minutes)
Barbara Hall, RN
Pamela Griffin, Parent Advisor on Staff, Johns Hopkins Children’s Center

Providing Adult Care: A Partnership with Patients (video: 34 minutes 31 seconds)
Michael P. Boyle, MD, FCCP, Associate Professor of Medicine, Director, Johns Hopkins Adult Cystic Fibrosis Program

Advances in CF Research (video: 21 minutes 55 seconds)
Pamela Zeitlin, MD, Professor of Pediatrics


Family Education Day 2011

Saturday, November 19, 2011

Introduction and Highlights of the Previous Year (video: 27 minutes 13 seconds)
Peter J. Mogayzel Jr., MD, PhD, Associate Professor, School of Medicine

Research Advances (video: 1 hour 1 minute 30 seconds)
Michael P. Boyle, MD, FCCP, Associate Professor of Medicine, Director, Johns Hopkins Adult Cystic Fibrosis Program

Environmental and Genetic Influences on CF Lung Disease (video: 34 minutes 22 seconds)
J. Michael Collaco, MD, Associate Professor of Pediatrics, Johns Hopkins University School of Medicine