What is CF?
Real Facts for You
Did you know that over 1000 mutations in the CFTR gene can lead to cystic fibrosis?Learn More
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Finding Solutions Together
Participate in a research study of new cystic fibrosis therapies at Johns Hopkins.Learn More
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- Anthera Pharmaceuticals Announces Acquisition of Sollpura(R) (liprotamase) for Exocrine... http://t.co/yWVSpU8muJ
- Cystic Fibrosis Trust and NovaBiotics Enter Partnership for Phase IIa Clinical Trial http://t.co/nMFcWsP7Z0
- Vertex’s Two-Drug Cystic Fibrosis Treatment Shows Promise in Clinical... http://t.co/hwwdfzb0jY
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Vertex Pharmaceuticals Releases Results of Studies of Lumacaftor (VX-809) and Ivacaftor
June 24, 2014
Vertex Pharmaceutials announces exciting news on the results of two phase 3 studies of lumacaftor (VX-809) in combination with ivacaftor in people with cystic fibrosis who have 2 copies of the F508del mutation. People treated with the two drugs had a statistically significant improvement in FEV1 compared to those receiving placebo. Read more.
Research Study of MRSA Therapy Is Now Enrolling
June 18, 2014
We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.
Admission to The Johns Hopkins Hospital
June 17, 2014
Admission to the hospital can be a great source of anxiety. Information about what to bring, who you’ll meet, what your experience will be like, and when you’ll go home can be found here.
Thank You for Helping Us Cure CF
June 17, 2014
Join us in helping to cure CF by participating in a Great Strides walk near you. You can support the Johns Hopkins CF Team by walking with us at M&T Bank Stadium on May 29th or by donating to our team.
Hopkins CF Newsletter: Partners in Discovery
Issue: Fall 2012
Modifying Disease: By developing compounds that push proteins to the surface of the lungs and then turn them on, researchers aim to correct the salt and water imbalance that causes cystic fibrosis. DOWNLOAD PDF | SIGN-UP
- Treatment Adherence: Why does it Matter? What Can We Do to Help?