What is CF?
Real Facts for You
Did you know that over 1000 mutations in the CFTR gene can lead to cystic fibrosis?Learn More
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Finding Solutions Together
Participate in a research study of new cystic fibrosis therapies at Johns Hopkins.Learn More
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- Cysteamine Lynovex Identified As a Potential Adjuvant Therapy in CF http://t.co/nfnKUN2Of0
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Orkambi Approved by FDA
Orkambi has been approved for use in patients with CF caused by 2 F508del CFTR gene mutations. More information can be found at www.orkambi.com
New Issue of eCystic Fibrosis Review Is Available
Check out the latest issue of eCF Review on Effect of CFTR-modifying therapies authored by Stuart Elborn, MD, Dean of the School of Medicine, Dentistry and Biomedical Sciences, Queen’s University, Belfast, Ireland
Several Research Studies Are Now Enrolling
Researchers at Johns Hopkins are in need of your help. We are looking for children and adults to participate in studies of exercise and sleep in CF and to help develop new therapies for people with CF. Get more information.
New Lung Function Reference Equations In Use
The pediatric pulmonary function laboratory is now using the Global Lungs Initiative reference equations for predicted values.
Two Research Studies on Sleep and CF Are Now Enrolling.
Studies of “Sleep-Related Ventilatory Mechanics & Energy Expenditure in Children and Adults with Cystic Fibrosis” and “Use of High Flow Nasal Insufflation in Children and Adults with Cystic Fibrosis” are now enrolling. Get more information
Hopkins CF Newsletter: Partners in Discovery
Issue: Winter 2015
The Transition: As the average life expectancy of patients with CF has risen dramatically over the past 20 years, more and more patients are living on their own, attending college and pursuing careers. DOWNLOAD PDF | SIGN-UP