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Did you know that over 1000 mutations in the CFTR gene can lead to cystic fibrosis?Learn More
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Video on Preparing for Surgery at the Children’s Center Now Available
August 6, 2014
Research Study of MRSA Therapy Is Now Enrolling
August 1, 2014
We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.
Study on Pulmonary Exacerbations Is Now Enrolling
July 30, 2014
The Pilot Observational Study to Determine Feasibility of a Standardized Treatment of Pulmonary Exacerbations in Patients with Cystic Fibrosis (STOP) is enrolling patients 18 and older who have CF and require hospitalization for intravenous antibiotics to treat a pulmonary exacerbation at Johns Hopkins Hospital is now enrolling patients. Get more information.
Treatment Adherence: Why does it Matter? What Can We Do to Help?
July 29, 2014
Vertex Pharmaceuticals Releases Results of Studies of Lumacaftor (VX-809) and Ivacaftor
June 24, 2014
Vertex Pharmaceutials announces exciting news on the results of two phase 3 studies of lumacaftor (VX-809) in combination with ivacaftor in people with cystic fibrosis who have 2 copies of the F508del mutation. People treated with the two drugs had a statistically significant improvement in FEV1 compared to those receiving placebo. Read more.
Hopkins CF Newsletter: Partners in Discovery
Issue: Fall 2012
Modifying Disease: By developing compounds that push proteins to the surface of the lungs and then turn them on, researchers aim to correct the salt and water imbalance that causes cystic fibrosis. DOWNLOAD PDF | SIGN-UP