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New Lung Function Reference Equations In Use
April 17, 2015
The pediatric pulmonary function laboratory is now using the Global Lungs Initiative reference equations for predicted values.
Lung Infection in CF: Prevention and Treatment
April 16, 2015
Ivacaftor Approved for Young Children with CF
March 19, 2015
Vertex Received U.S. Food and Drug Administration Approval of KALYDECO® (ivacaftor) for Children with Cystic Fibrosis Ages 2 to 5 who have Specific Mutations in the CFTR Gene. See the press release.
New Issue of eCystic Fibrosis Review Is Available
March 18, 2015
Check out the latest issue of eCF Review on Improving digestive capabilities in nutritionally compromised patients with CF authored by Steven Freedman, MD, PhD, Professor of Medicine at Harvard University.
Two Research Studies on Sleep and CF Are Now Enrolling.
March 18, 2015
Studies of “Sleep-Related Ventilatory Mechanics & Energy Expenditure in Children and Adults with Cystic Fibrosis” and “Use of High Flow Nasal Insufflation in Children and Adults with Cystic Fibrosis” are now enrolling. Get more information
Hopkins CF Newsletter: Partners in Discovery
Issue: Winter 2015
The Transition: As the average life expectancy of patients with CF has risen dramatically over the past 20 years, more and more patients are living on their own, attending college and pursuing careers. DOWNLOAD PDF | SIGN-UP
Family Day Presentations Are Available Online
The recorded webcast of our Annual Johns Hopkins CF Center Family Education Day is now available. Dr. Michael Boyle was our keynote speaker. His presentation was entitled The Journey to Delivering Transformational CF Therapeutics.