Check Out the Current Clinical Research at Johns Hopkins
Researchers at Johns Hopkins are recruting individuals of all ages for clinical trials. Click here to check out the current trials or contact Karen Callahan at 410-955-1167.

 

Vertex Releases Promising Data on VX-661 and Ivacaftor
The combination of VX-661 and ivacaftor led to a significant improvement in lung function in adults with CF due to two F508del CFTR mutations. Twenty eight days of therapy led to a 7.5-9% relative increase in FEV₁ compared to a 0.03% increase in those taking a placebo. Click here for more information.

 

Please watch the presentaion entitled “Living and Thriving with Cystic Fibrosis” given by Tiffany Christensen, a nationally recognized speaker and author of “Sick Girl Speaks”. Tiffany has cystic fibrosis and has received two life-saving lung transplants. She spoke from the perspective of a patient with cystic fibrosis and a professional patient advocate. Click here for the link.