What is CF?
Real Facts for You
Did you know that over 1000 mutations in the CFTR gene can lead to cystic fibrosis?Learn More
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Finding Solutions Together
Participate in a research study of new cystic fibrosis therapies at Johns Hopkins.Learn More
Follow Us on Twitter @HopkinsCF
- Check of the clinical trials that are now enrolling at the Johns Hopkins Cystic Fibrosis Center http://t.co/dnkI9oTNSA
- The Patient Assistant Resource Center on the CF Foundation website has been updated. Check it out! http://t.co/ZD7iY4ppGJ
- Check out our redesigned website, http://t.co/Ti2ojpDu6i http://t.co/cvHcB2ZWMG
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New Inpatient Guide Available
November 26, 2013
This guide written by the CF Center Family Advisory Board provides helpful advise regarding admission to the Johns Hopkins Children’s Center. Download the Guide.
CF Recipes Now Available
November 20, 2013
The Johns Hopkins CF Center Family Advisory Board has created a cookbook of favorite recipes. Download the cookbook.
CF Legal Hotline
November 18, 2013
The Cystic Fibrosis Legal Hotline provides confidential information free of charge to individuals with CF, their family members and their CF care center team. Download more information.
Family Day Presentations Are Online
November 18, 2013
The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition topics and advances in CF research. View Family Education Day 2013.
Hopkins CF Newsletter: Partners in Discovery
Issue: Fall 2012
Modifying Disease: By developing compounds that push proteins to the surface of the lungs and then turn them on, researchers aim to correct the salt and water imbalance that causes cystic fibrosis. DOWNLOAD PDF | SIGN-UP
Annual Family Education Day
November 9, 2013
The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF research.