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Results from the combined Kalydeco/VX-809 trial released
Vertex Pharmaceuticals announced promising interim results from a Phase 2 clinical trial of a combination of Kalydeco™ and VX-809. Individuals with two F508del mutations that took the medications for 56 days had a significant improvement in lung function compared to those that received a placebo. For more information click here.

Bloomberg Children's Center Opens
The Children's Center opened May 1st. This state-of-the-art facility will provide a venue for delivery of patient and family centered care to hospitalized children. Click here for more information and a virtual tour.

New Clinical Buildings Dedicated
Watch the dedication ceremonies for the new inpatient towers. The New Bloomberg Children's Center will open May 1st. Click for information about our new home.

Home Spirometry Study Now Enrolling
This study compares usual care to a program using home electronic devices that measure lung function and symptoms to identify and treat pulmonary exacerbations in CF patients ages 14 and older.  The purpose of this study is to determine if earlier treatment of exacerbations will improve lung function and quality of life. Click here for more information.

FDA Approves Kalydeco (VX-770) 
Kalydeco has been approved for children 6 years and older with at least one G551D mutation. This is the first drug that acts directly on the defective CFTR protein that causes CF. Click here for more information.

Putting Parents in Charge of Meals: Behavioral Strategies to Help Parents and Kids Meet CF Dietary Recommendations
Dr. Lori Stark's presentation on behavioral interventions that can help children with CF achieve optimal nutritional goals is available online. Dr. Stark is the Director of Behavioral Medicine and Clinical Psychology at University of Cincinnati College of Medicine, Click here to view the presentation.

Subscribe to eCystic Fibrosis Review
Our monthly continuing education newsletter reviewing the latest CF literature will be delivered to your email every month, Click here to subscribe.

Did You Know that Our Previous Educational Events Are Online?
The presentations from our 2011 Family Education Day can be viewed by clicking here. Introduction and 2011 Highlights, Dr. Peter Mogayzel Research Advances, Dr. Michael Boyle
Environmental and Genetic Influences on CF Lung Disease, Dr. J. Michael Collaco

Dr. Steven Rowe's lecture on "Advances in CF Therapeutics"  is now available online. Watch the video now.

The talks from our 2010 Family Education Day, can be viewed online by clicking here. All the talks can be viewed including: Dr. Preston Campbell, Executive Vice President for Medical Affairs of the CF Foundation.

View a presentation by Dr. Kerem, a world known leader in CF research, who has been at the forefront of the development of PTC124..

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