Teenage boy reading Hopkins CF Newsletter: Partners in Discovery

News and Events

Share This Page    

Eradication Guidelines for Pseudomonas aeruginosa Eradication Published

January 23, 2015

Cystic Fibrosis Foundation Pulmonary Clinical Practice Guidelines Committee chaired by Dr. Mogayzel has published the guidelines for the eradication for Pseudomonas aeruginosa in the Annals of the American Thoracic Society.

Two Research Studies on Sleep and CF Are Now Enrolling.

January 10, 2015

Studies of “Sleep-Related Ventilatory Mechanics & Energy Expenditure in Children and Adults with Cystic Fibrosis” and “Use of High Flow Nasal Insufflation in Children and Adults with Cystic Fibrosis” are now enrolling. Get more information

FDA Expands the Indication for Ivacaftor

December 30, 2014

The Food & Drug Administration has approved an expansion of the indication for ivacaftor (Kalydaco) to include people with CF due to at least one R117H CFTR mutation. Ivacaftor is now approved for use in the U.S. in people ages 6 and older with CF with one of the following ten CFTR  mutations: R117H, G551D, G178R, S549N, S549R, G551S, G1244E, S1251N, S1255P or G1349D.

New Issue of Partners in Discovery Available

December 30, 2014

The Winter 2015 issue of Partners in Discovery is now available. Read it now.

Learn More About CF Research at Johns Hopkins

December 28, 2014

Check out our newsletter about the clinical research trials that are now enrolling at Johns Hopkins. For more information email hopkinscf@jhmi.edu or call 410-955-1167.

Family Day Presentations Are Available Online

November 29, 2014

The recorded webcast of our Annual Johns Hopkins CF Center Family Education Day is now available. Dr. Michael Boyle was our keynote speaker. His presentation was entitled The Journey to Delivering Transformational CF Therapeutics.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

November 16, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Study of Inhaled Mannitol Is Now Enrolling

November 1, 2014

We are now enrolling CF patients aged 18 and older for a Phase III double‐blind, randomized trial of inhaled mannitol. Get more information.

Research Study of MRSA Therapy Is Now Enrolling

November 1, 2014

We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.

 

Resources for School

September 29, 2014

Check of the resources available for teachers and schools at the CF Foundation w