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Family Day – November 15, 2014

October 31, 2014

Join us for our Annual Johns Hopkins CF Center Family Education Day on Saturday. Dr. Michael Boyle will be our keynote speaker. His presentation is entitled The Journey to Delivering Transformational CF Therapeutics. Family Day Schedule. The program will be webcast live beginning at 8:30am. View the webcast.
RSVP by email to hopkinscf@jhmi.edu or by calling 410-955-1795, option #4.

Dr. Michael Boyle to Speak at Family Day

October 31, 2014

Join us for our Annual Johns Hopkins CF Center Family Education Day on Saturday, November 15, 2014. Dr. Michael Boyle will be our keynote speaker. His presentation is entitled The Journey to Delivering Transformational CF Therapeutics. Family day Schedule.

Possible B. cepacia Contamination of Baby Wipes

October 14, 2014

There has been a recall of Simply Right baby wipes at Sam’s Club due to possible Burkholderia cepacia contamination. Please discontinue using these wipes and return them to the store. If you have been using these wipes there is little risk of infection. However, it would be prudent to clean surfaces that have been used

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Dr. Boyle Presentation at NACFC

October 13, 2014

The plenary sessions from the North American CF Conference (NACFC) in Atlanta including “Scaling the Mountain: The Journey to Delivering Transformational CF Therapeutics” presented by Dr. Michael Boyle are available online. Register to view the presentation.

Study of Inhaled Mannitol Is Now Enrolling

October 1, 2014

We are now enrolling CF patients aged 18 and older for a Phase III double‐blind, randomized trial of inhaled mannitol. Get more information.

Research Study of MRSA Therapy Is Now Enrolling

October 1, 2014

We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.

 

Resources for School

September 29, 2014

Check of the resources available for teachers and schools at the CF Foundation w

Treatment Adherence: Why does it Matter? What Can We Do to Help?

July 29, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Annual Family Education Day

June 25, 2013

The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF  research.