July 30, 2014
The Pilot Observational Study to Determine Feasibility of a Standardized Treatment of Pulmonary Exacerbations in Patients with Cystic Fibrosis (STOP) is enrolling patients 18 and older who have CF and require hospitalization for intravenous antibiotics to treat a pulmonary exacerbation at Johns Hopkins Hospital is now enrolling patients. Get more information.
July 30, 2014
Join us for our Annual Johns Hopkins CF Center Family Education Day on Saturday, November 15, 2014. Dr. Michael Boyle will be our keynote speaker. He will be discussing advances in CF research.
July 29, 2014
June 24, 2014
Vertex Pharmaceutials announces exciting news on the results of two phase 3 studies of lumacaftor (VX-809) in combination with ivacaftor in people with cystic fibrosis who have 2 copies of the F508del mutation. People treated with the two drugs had a statistically significant improvement in FEV1 compared to those receiving placebo. Read more.
June 18, 2014
We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.
June 25, 2013
The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF research.