Teenage boy reading Hopkins CF Newsletter: Partners in Discovery

News and Events

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New Issue of eCystic Fibrosis Now Available

November 30, 2014

Check out the latest issue of eCystic Fibrosis Review - Pulmonary Exacerbations: Antibiotics and Outcomes

Family Day Presentations Are Now Available Online.

November 29, 2014

Check out the presentations from our Annual Johns Hopkins CF Center Family Education Day held on Saturday, November 15, 2014.

Family Day Presentations Are Available Online

November 29, 2014

The recorded webcast of our Annual Johns Hopkins CF Center Family Education Day is now available. Dr. Michael Boyle was our keynote speaker. His presentation was entitled The Journey to Delivering Transformational CF Therapeutics.

Two Research Studies on Sleep and CF Are Now Enrolling.

November 17, 2014

Studies of “Sleep-Related Ventilatory Mechanics & Energy Expenditure in Children and Adults with Cystic Fibrosis” and “Use of High Flow Nasal Insufflation in Children and Adults with Cystic Fibrosis” are now enrolling. Get more information

New CF Research Newsletter Now Available

November 17, 2014

Check out our newsletter about the clinical research trials that are now enrolling at Johns Hopkins. For more information email hopkinscf@jhmi.edu or call 410-955-1167.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

November 16, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Study of Inhaled Mannitol Is Now Enrolling

November 1, 2014

We are now enrolling CF patients aged 18 and older for a Phase III double‐blind, randomized trial of inhaled mannitol. Get more information.

Research Study of MRSA Therapy Is Now Enrolling

November 1, 2014

We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.

 

Resources for School

September 29, 2014

Check of the resources available for teachers and schools at the CF Foundation w

Annual Family Education Day

June 25, 2013

The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF  research.