Teenage boy reading Hopkins CF Newsletter: Partners in Discovery

News and Events

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Family Education Day

October 2, 2015

Save the Date. The Annual CF Family Education Day will be Saturday, November 21, 2015. Our featured speaker will be Dr. Bob Beall, former President and CEO of the CF Foundation.

Dr. Preston Campbell Becomes President and CEO of CF Foundation

October 2, 2015

Preston W. Campbell, III, M.D., has been appointed the president and chief executive officer of the Cystic Fibrosis Foundation. He previously served as the Foundation’s executive vice president for medical affairs. Read Dr. Campbell’s promise to the CF community.

New Issue of eCystic Fibrosis Review Is Available

October 1, 2015

Check out the latest issue of eCF Review on  Effect of CFTR-modifying therapies authored by Stuart Elborn, MD, Dean of the School of Medicine, Dentistry and Biomedical Sciences, Queen’s University, Belfast, Ireland

Recorded Webcasts Available Online

July 31, 2015

Annual Johns Hopkins CF Center Family Education Day.

Lung Infection in CF: Prevention and Treatment presented by Dr. Lisa Saiman.

Several Research Studies Are Now Enrolling

July 30, 2015

Researchers at Johns Hopkins are in need of your help. We are looking for children and adults to participate in studies of exercise and sleep in CF and to help develop new therapies for people with CF.  Get more information.

Two Research Studies on Sleep and CF Are Now Enrolling.

March 18, 2015

Studies of “Sleep-Related Ventilatory Mechanics & Energy Expenditure in Children and Adults with Cystic Fibrosis” and “Use of High Flow Nasal Insufflation in Children and Adults with Cystic Fibrosis” are now enrolling. Get more information

Learn More About CF Research at Johns Hopkins

March 18, 2015

Check out our newsletter about the clinical research trials that are now enrolling at Johns Hopkins. For more information email hopkinscf@jhmi.edu or call 410-955-1167.

Eradication Guidelines for Pseudomonas aeruginosa Eradication Published

January 23, 2015

Cystic Fibrosis Foundation Pulmonary Clinical Practice Guidelines Committee chaired by Dr. Mogayzel has published the guidelines for the eradication for Pseudomonas aeruginosa in the Annals of the American Thoracic Society.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

November 16, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Study of Inhaled Mannitol Is Now Enrolling

November 1, 2014

We are now enrolling CF patients aged 18 and older for a Phase III double‐blind, randomized trial of inhaled mannitol. Get more information.