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News and Events

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Study on Pulmonary Exacerbations Is Now Enrolling

July 30, 2014

The Pilot Observational Study to Determine Feasibility of a Standardized Treatment of Pulmonary Exacerbations in Patients with Cystic Fibrosis (STOP) is enrolling patients 18 and older who have CF and require hospitalization for intravenous antibiotics to treat a pulmonary exacerbation at Johns Hopkins Hospital is now enrolling patients. Get more information.

Save the Date – Annual Family Education Day

July 30, 2014

Join us for our Annual Johns Hopkins CF Center Family Education Day on Saturday, November 15, 2014. Dr. Michael Boyle will be our keynote speaker. He will be discussing advances in CF research.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

July 29, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Vertex Pharmaceuticals Releases Results of Studies of Lumacaftor (VX-809) and Ivacaftor

June 24, 2014

Vertex Pharmaceutials announces exciting news on the results of two phase 3 studies of lumacaftor (VX-809) in combination with ivacaftor in people with cystic fibrosis who have 2 copies of the F508del mutation. People treated with the two drugs had a statistically significant  improvement in FEV1 compared to those receiving placebo. Read more.

Research Study of MRSA Therapy Is Now Enrolling

June 18, 2014

We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.

 

Annual Family Education Day

June 25, 2013

The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF  research.