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Nutrition in Cystic Fibrosis

January 25, 2016

Johns Hopkins Dietitian Amanda Leonard has edited a comprehensive text entitled Nutrition in Cystic Fibrosis – A Guide for Clinicians.

Partners in Discovery

January 25, 2016

Check out the latest issue of Partners in Discovery highlighting CF research at Johns Hopkins. Download the PDF.

Recorded Webcasts Available Online

January 24, 2016

Annual Johns Hopkins CF Center Family Education Day.

Lung Infection in CF: Prevention and Treatment presented by Dr. Lisa Saiman.

Award for Excellence in Clinical Collaboration and Teamwork

December 17, 2015

The Johns Hopkins Cystic Fibrosis Center Care Team wins the inaugural Johns Hopkins Medicine Award for Excellence in Clinical Collaboration and Teamwork

Adherence Symposium Now Available

December 10, 2015

Portraits of Adherence: Patient Centered Strategies in Cystic Fibrosis, our satellite symposium at the 29th Annual North American Cystic Fibrosis Conference this past October, is now available online. View the Symposium.

Check Out Our Family Day Videos

December 3, 2015

Videos of the presentations at the Johns Hopkins CF Family Day on November 21, 2015 are now available. These presentations include great insights from parents of children with CF, an adult with CF and Dr. Bob Beall, former President and CEO of the CF Foundation. View the Videos.

Continuing Medical Education

November 2, 2015

The Johns Hopkins CF Center sponsors several continuing medical education programs including eCystic Fibrosis Review, a monthly newsletter and podcast that is send directly to your email inbox. Check out all our programs.

Help Us Cure CF – Join a Research Study

November 2, 2015

Researchers at Johns Hopkins are in need of your help. We are looking for children and adults to participate in studies of exercise and sleep in CF and to help develop new therapies for people with CF.  Get more information.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

November 16, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Annual Family Education Day

June 25, 2013

The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF  research.