Teenage boy reading Hopkins CF Newsletter: Partners in Discovery

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Exercise Study Is Now Enrolling

May 1, 2015

We are now enrolling adolescents and young adults from the Johns Hopkins CF Center who have cystic fibrosis for a research study to evaluate an outpatient fitness-training program called Do More, B’More, Live Fit. Get more information.

Webcast on Lung Infection in CF Is Available Online Now

April 24, 2015

The webcast of Lung Infection in CF: Prevention and Treatment presented by Dr. Lisa Saiman, Professor of Pediatrics at Columbia University School of Medicine is available online. View the webcast.

New Lung Function Reference Equations In Use

April 17, 2015

The pediatric pulmonary function laboratory is now using the Global Lungs Initiative reference equations for predicted values.

Ivacaftor Approved for Young Children with CF

March 19, 2015

Vertex Received U.S. Food and Drug Administration Approval of KALYDECO® (ivacaftor) for Children with Cystic Fibrosis Ages 2 to 5 who have Specific Mutations in the CFTR Gene. See the press release.

New Issue of eCystic Fibrosis Review Is Available

March 18, 2015

Check out the latest issue of eCF Review on Improving digestive capabilities in nutritionally compromised patients with CF authored by Steven Freedman, MD, PhD, Professor of Medicine at Harvard University.

Two Research Studies on Sleep and CF Are Now Enrolling.

March 18, 2015

Studies of “Sleep-Related Ventilatory Mechanics & Energy Expenditure in Children and Adults with Cystic Fibrosis” and “Use of High Flow Nasal Insufflation in Children and Adults with Cystic Fibrosis” are now enrolling. Get more information

Learn More About CF Research at Johns Hopkins

March 18, 2015

Check out our newsletter about the clinical research trials that are now enrolling at Johns Hopkins. For more information email hopkinscf@jhmi.edu or call 410-955-1167.

Eradication Guidelines for Pseudomonas aeruginosa Eradication Published

January 23, 2015

Cystic Fibrosis Foundation Pulmonary Clinical Practice Guidelines Committee chaired by Dr. Mogayzel has published the guidelines for the eradication for Pseudomonas aeruginosa in the Annals of the American Thoracic Society.

Family Day Presentations Are Available Online

November 29, 2014

The recorded webcast of our Annual Johns Hopkins CF Center Family Education Day is now available. Dr. Michael Boyle was our keynote speaker. His presentation was entitled The Journey to Delivering Transformational CF Therapeutics.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

November 16, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.