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News and Events

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Resources for School

August 29, 2014

Check of the resources available for teachers and schools at the CF Foundation w

Study of Inhaled Mannitol Is Now Enrolling

August 29, 2014

We are now enrolling CF patients aged 18 and older for a Phase III double‐blind, randomized trial of inhaled mannitol. Get more information.

Video on Preparing for Surgery at the Children’s Center Now Available

August 6, 2014

Watch a video on what to expect when coming to the Johns Hopkins Children’s Center for surgery or a bronchoscopy. Additional information about what to expect can be found here.

Research Study of MRSA Therapy Is Now Enrolling

August 1, 2014

We are now enrolling adults infected with MRSA in the Persistent MRSA Eradication Protocol (PMEP) is to test a new inhaled therapy. Get more information.

 

Save the Date – Annual Family Education Day

July 30, 2014

Join us for our Annual Johns Hopkins CF Center Family Education Day on Saturday, November 15, 2014. Dr. Michael Boyle will be our keynote speaker. He will be discussing advances in CF research.

Treatment Adherence: Why does it Matter? What Can We Do to Help?

July 29, 2014

The webcast of  Dr. Kristin Riekert’s  presentation entitled “Treatment Adherence: Why does it Matter? What Can We Do to Help?” is now available. View the presentation.

Annual Family Education Day

June 25, 2013

The presentations from this year’s CF Family Education, held on November 9, 2013 are now available online. Several important topics were presented including: Laws important to those with CF, exercise and nutrition and advances in CF  research.